The 20 Best Clouston Syndrome Doctors Near Me in Palo Alto, CA

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors near Palo Alto, CA

Last Updated: 02/22/2026

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MediFind found 25 doctor with experience in Clouston Syndrome near Palo Alto, CA. Of these, 21 are Experienced, 2 are Advanced and 2 are Distinguished.

Location
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25 providers found
    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Lucille Packard Children's Hospital 030962

    770 Welch Rd, 
    Palo Alto, CA 
     (1.8 miles away)
    Languages Spoken:
    English

    Joyce Teng is a Pediatrics provider in Palo Alto, California. Dr. Teng is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, Fetal Retinoid Syndrome, and Liver Embolization.

    Distinguished in Clouston Syndrome
    Pediatrics
    Distinguished in Clouston Syndrome
    Pediatrics

    Child And Adolescent Mental Health-Stanford Children's Health Specialty Services-Sunnyvale

    1195 W Fremont Ave, 
    Sunnyvale, CA 
     (7.6 miles away)
    Languages Spoken:
    English

    Dawn Siegel is a Pediatrics provider in Sunnyvale, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
     (0.8 miles away)
    Languages Spoken:
    English

    Kerri Rieger is a Dermatologist in Palo Alto, California. Dr. Rieger is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Mycosis Fungoides, Melanoma, and Sebaceous Adenoma.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
     (0.8 miles away)
    Languages Spoken:
    English

    Wingfield Rehmus is a Dermatologist in Palo Alto, California. Dr. Rehmus is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Scabies, Atopic Dermatitis, Hypohidrotic Ectodermal Dysplasia, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Office

    300 Pasteur Dr, 
    Stanford, CA 
     (1.9 miles away)
    Languages Spoken:
    English

    Lindsey Voller is a Dermatologist in Stanford, California. Dr. Voller is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Contact Dermatitis, Infantile Low Calcium Level, Melkersson-Rosenthal Syndrome, and Melasma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    300 Pasteur Dr Rm H1307, 
    Stanford, CA 
     (2.2 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Jeffrey Guccione is a Radiologist in Stanford, California. Dr. Guccione has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ascites, Splenomegaly, Splenic Infarction, and Visceromegaly.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Stanford University Medical Center

    450 Broadway St, 
    Redwood City, CA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Oro is a Dermatologist in Redwood City, California. Dr. Oro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Nevoid Basal Cell Carcinoma Syndrome, Graham-Little-Piccardi-Lassueur Syndrome, and Malignant Hypertension.

    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
     (1.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Stevenson is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Stevenson is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

    Distinguished in Clouston Syndrome
    Neuroradiology
    Distinguished in Clouston Syndrome
    Neuroradiology

    Kaiser Permanente Santa Clara Medical Center

    700 Lawrence Expy, 
    Santa Clara, CA 
     (10.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Mark Mamlouk is a Neuroradiologist in Santa Clara, California. Dr. Mamlouk has been practicing medicine for over 18 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Comprehensive Ophthalmology And Optometry

    2452 Watson Ct, 
    Palo Alto, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Heather Moss is a Neurologist in Palo Alto, California. Dr. Moss is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pseudotumor Cerebri Syndrome, Increased Intracranial Pressure, Papilledema, Spinal Fusion, and Stent Placement.

    Experienced in Clouston Syndrome
    Child and Adolescent Psychiatry
    Experienced in Clouston Syndrome
    Child and Adolescent Psychiatry

    Stanford Psychiatry Residency

    401 Quarry Rd, 
    Palo Alto, CA 
     (1.5 miles away)
    Languages Spoken:
    English

    Tamar Green is a Child and Adolescent Psychiatrist in Palo Alto, California. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Turner Syndrome, RASopathies, Noonan Syndrome, and Intersex.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    725 Welch Rd, 
    Palo Alto, CA 
     (1.8 miles away)
    Languages Spoken:
    English

    Akash Kumar is a Medical Genetics provider in Palo Alto, California. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Phacomatosis Pigmentovascularis, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics | Pediatric Neurology
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics | Pediatric Neurology
    725 Welch Rd, 
    Palo Alto, CA 
     (1.8 miles away)
    Languages Spoken:
    English

    Maura Ruzhnikov is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Ruzhnikov is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Recessive Chondrodysplasia Punctata 1, West Syndrome, Adrenoleukodystrophy (ALD), and CACH Syndrome.

    Experienced in Clouston Syndrome
    Pediatric Gastroenterology
    Experienced in Clouston Syndrome
    Pediatric Gastroenterology

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
     (1.8 miles away)
    Languages Spoken:
    English

    Alka Goyal is a Pediatric Gastroenterologist in Palo Alto, California. Dr. Goyal is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Ulcerative Colitis, Endoscopy, and Colonoscopy.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    300 Pasteur Drive, H-315, Room H-315, 
    Palo Alto, CA 
     (1.9 miles away)
    Languages Spoken:
    English

    Louanne Hudgins is a Medical Genetics provider in Palo Alto, California. Dr. Hudgins is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are 1p36 Deletion Syndrome, Micrognathia, Costello Syndrome, and RASopathies.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Stanford Hospital And Clinics

    300 Pasteur Dr, 
    Stanford, CA 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Robert Dodd is a Neurosurgery provider in Stanford, California. Dr. Dodd is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Stroke, Thrombectomy, and Stent Placement.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Office

    300 Pasteur Dr Rm 209, 
    Stanford, CA 
     (2.2 miles away)
    Languages Spoken:
    English

    Nadia Khan is a Neurosurgery provider in Stanford, California. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Moyamoya Disease, PHACE Syndrome, Stroke, Aplasia Cutis Congenita, and Extracranial-Intracranial Bypass Surgery.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    730 Welch Rd Ste 206, 
    Palo Alto, CA 
     (5.1 miles away)
    Languages Spoken:
    English

    Brenda Porter is a Neurologist in Palo Alto, California. Dr. Porter is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Seizures, Tuberous Sclerosis, Tuberous Sclerosis Complex, Epilepsy, and Deep Brain Stimulation.

    Experienced in Clouston Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Clouston Syndrome
    Neonatology | Obstetrics and Gynecology

    Office

    770 Welch Rd Ste 201, 
    Palo Alto, CA 
     (5.1 miles away)
    Languages Spoken:
    English

    Yair Blumenfeld is a Neonatologist and an Obstetrics and Gynecologist in Palo Alto, California. Dr. Blumenfeld is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Bilateral Renal Agenesis Dominant Type, Gastroschisis, Gestational Diabetes, Hernia, and Septoplasty.

    Experienced in Clouston Syndrome
    Neonatology
    Experienced in Clouston Syndrome
    Neonatology

    Office

    750 Welch Rd Ste 315, 
    Palo Alto, CA 
     (5.1 miles away)
    Languages Spoken:
    English

    Susan Hintz is a Neonatologist in Palo Alto, California. Dr. Hintz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Premature Infant, Umbilical Hernia, Omphalocele, Necrotizing Enterocolitis, and Gastrostomy.

    Showing 1-20 of 25

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Palo Alto, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Palo Alto, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Palo Alto, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Palo Alto, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Palo Alto, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Palo Alto, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Palo Alto, CA?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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